Oh happy day! We had a tiny break from the feeding tube one afternoon this past week, before she received a new one.
And we had ourselves a fabulous time doing absolutely nothing.
No worries of her pulling the tube out when I left the room.
Free to roll, sit, and play however she pleased.
Free to ride on my hip all through the house without dragging the pump behind us.
She had a bubble bath free of keeping tape dry or tube in place.
She even had some baby food. She loved every bite and cried when it was over.
I took a lot for granted. Simple things that once even bothered me, are now months away from being the norm. Gratitude is sinking in.
My friends are amazing. Truly, I feel like thank you notes are a laughable response to how much they have stepped in to love my girls and take care of us. Each one has blessed our family in a way my heart will forever remember. We are soaked in love.
This is my dear friend Jenny.
She loves my girls with a tender affection and grace.
My thankful heart deepens.
Tonight, we commenced our day of errands and swimming with friends with a little fishing trip.
After some cupcakes, of course.
Or just think Sophie Lynn.
The latest...she continues to amaze her nurses and doctors with her growth. She's up to 15.9 pounds now. She'll have rechecks for tumors every few months and then years. Weekly evaluations of her feeding tube progress. And weight checks twice a week. Coasting and growing through the summer is the plan.
Continuing to discover layers of strength and stamina. His pockets of rest and joy throughout the day.
I am laughing as I think about today. How I dropped the feeding tube pump in the garage, how we swam with sweet mommies who held babies and watched older lovelies swim. Like all other mamas, changing tons of diapers, filling up sippy cups, and making sure they know just how treasured they really are. Nothing fancy or exciting happened today. Just the norm.
And is was just plain lovely.